Blogging the life of a little girl with a rare chromosome 2q24.3q32.1 deletion
This last year has been a tough one for sweet Eloise and us as her caregivers. But there were still joyful times even amidst all of the pain and tears. So I decided to find a few videos from every month, to help us remember some of those good times. But also write a little... Continue Reading →
This is part 2 to the story of Eloise's baby brother K entering our lives. You can read Making his entrance -- Part 1 here. Over the last few years, I've noticed many posts in local facebook mom groups asking some form of the question "What kinds of local playgroups or activities do you recommend... Continue Reading →
I brought my nice camera to the hospital. Yet it sat inside my suitcase, untouched, for our entire 11 day stay. Why? Because I didn't want to remember
It's Friday, February 5th. And it looks like no one will be coming home today.
We brought our camera with us to the hospital. I had dreamed of weary photos of me holding Eloise, exhausted from labor, of Brian bending down next to me laying in the hospital bed, the nurse taking our first out-of-focus photos as a family. But that's not what happened.
Eloise The Tiny Fighter 