Latest Posts
What is a good mother?
A scene from Mother’s Day in our house today. Brian on day 3 of an illness managing our 3 kids — Eloise in her stander, Baby G tugging at his feet, K in a swing, house a mess — mostly on his own. Recently, during the kids’ naptime I was doing a bit of self…
What is actually helping Eloise’s development
Over the years of sharing our Eloise struggles publicly, we’ve gotten a lot of kind suggestions from lovely humans. Like: Medical keto diet Music therapy Visual therapy CBD Nemechek protocol Probiotics (not this brand, THAT brand) Prebiotics Psychobiotics This diet That diet This therapy That therapy More vitamins and supplements than I can count And…
She’s baaack 🥳
This is a photo of Eloise on a potty. “Wait. Where is the potty?” You ask. It’s underneath Eloise who is contained by a banana box. “But why is Eloise in a banana box?” You wonder. Because making a daily schedule filled with stretches, time in her stander, making her walk from place to place,…
Getting (some of) Eloise back
Once upon a time, we were new parents and freshly grieving Eloise’s diagnosis. I’d found groups with kids like Eloise and seen all kinds of videos and photos of older kids with overlapping genetic deletions and it felt like my worst nightmare had just happened. I remember collapsing in the shower one afternoon, picturing a…
Something went wrong. Please refresh the page and/or try again.
Follow Me
Get new content delivered directly to your inbox.
Eloise The Tiny Fighter 