I’ve been realizing that everything I do with Eloise comes with a cost. If I’m rocking one thing, I’m failing at three others.
Mom guilt 24/7
Week 13: She is in so much less pain
The original post in late April of 2021 in her facebook group. In general, she's feeling so much better. I’m still shocked how much less pain she’s in (I’m guessing a combo of this elimination diet paired with “nursing”). Most feedings she still has maybe 5 minutes of crying and pain from reflux or gases,... Continue Reading →
Week 12: My 2 biggest fears before she was born
Original post on Eloise's facebook group a little over a month after we found out about her diagnosis. I had a lot of dreams about what it would be like to be a mom. Out of them all, what I imagined most was the first year of our relationship. I pictured it far more than... Continue Reading →
Week 11: Wonderful and weird
This was original posted on facebook in 2021 around a month after we found out about her diagnosis. This week was both wonderful and weird At this second, most of the time I just feel like a normal mom. Eloise is literally breastfeeding 95% of the time she’s awake these days. (And, unlike her bottle... Continue Reading →
Dreaming big for Eloise
KNOWING VS NOT KNOWING One Mom of a 17-year-old boy who has the same deletion as Eloise recently said, “Wow, reading your birth announcement made me realize how much more information you have at this point than we did years ago. Back then there was almost no information out there. I’m not sure if I would... Continue Reading →
Week 10: Doctors. Therapies. Hospitals. This is our life.
The original facebook post made a month after her original diagnosis in 2021. April 7, 2021 Doctors. Therapies. Hospitals. This is already our life. Like I mentioned, Tuesday last week was the orthopedic surgeon who gave us the good news of no hip dysplasia. Followed by a quick physiotherapy appointment. Then Wednesday we saw a doctor at a private... Continue Reading →
Week 9: Helping the world knows she matters
March 28, 2021 Originally posted on facebook in 2021 the same month we received Eloise's diagnosis. It's incredible what sleep will do. I've had almost 6 hours of sleep for 3 nights in a row. Thursday and Friday night, she surprised Brian and I and slept for 6 hours in a row. Saturday night she... Continue Reading →
Week 8: Finding a new North Star
March 20, 2021 This was originally published on facebook shortly after we received Eloise's diagnosis in 2021. So much to write. So little time. https://youtu.be/dPsNhKL27r4 This week, according to "wonder weeks" she should have given her first smile and tracked objects for short periods of time with her eyes.Smiles have not arrived yet, but apparently... Continue Reading →
Week 7: What does hope look like?
This was written on facebook about a week after we got Eloise's original diagnosis. For Eloise, I’d always thought the formula looked like this: Hope = Eloise will be a healthy “normal” kid (or, well, let’s face, it, extraordinary is what I was imagining since she’s ours) But it just can’t look like that. I don’t... Continue Reading →
Diagnosis day
Picture of a freshly-showered, hope-filled Mallory from earlier today. And a cute baby Eloise who had a wonderful, fairly calm and happy morning. Because we had no idea what was to come. Maybe we were in denial, but we never expected this.
Week 6: It’s like we have 2 Eloises
Saturday, March 6 2021 This was originally posted in Eloise's facebook group a month after she was born, and before we knew her diagnosis. I've been up since 3am with only 1 coffee. But it's going to be okay. We're going to be okay. Just when I thought I had it all figured out. Tuesday... Continue Reading →
Eloise The Tiny Fighter 