Blogging the life of a little girl with a rare chromosome 2q24.3q32.1 deletion
To say we’ve had a few rough patches over the last weeks may be an understatement. In case you missed recent events I posted about on Eloise's facebook group and the stories of Eloise's instagram page, I'll recap it. And then move on to those treasures I mentioned. The very short version On Saturday, November... Continue Reading →
Another seizure. This time longer. 40 minutes. In those moments, especially when Eloise gets a sudden breather for a half second before the seizures return and freeze her little body over and over, it’s heartbreaking. It feels like pain is all there is, and pain is all there will ever be. But I know tomorrow... Continue Reading →
I've been kinda freaking out. In the best way possible. I was fully preparing myself for a lifetime of Eloise struggling with food intolerances. Not only that, I was mentally making peace with the fact that not only would I also have to stay on a limited diet for quite some time as I continued... Continue Reading →
Brian here. I don't often write blogs, partially because I'm so impressed with Mallory's ability to communicate through them, and partially because I never really feel like what I have to say would be meaningful or useful to anyone. But I thought hey, I could give Mallory a bit of break so she could spend... Continue Reading →
At times, it feels like the “problems” never stop. We solve one problem, then another pops up that’s just as big. Or bigger. I guess that’s life with Eloise. No rest. Sigh.
At least once each day, as Brian holds Eloise, he pauses and turns his full attention to me. Then, with his voice breaking from the emotion of it, he says, "I know our baby girl has so many problems, but I wouldn't give this up. I would still choose this life with her even knowing... Continue Reading →
Eloise The Tiny Fighter 