They sent us home from the hospital on Tuesday the 7th, a little over 2 weeks after we first arrived -- far earlier than I'd expected. I was hoping to write a post about how after speaking to a psychologist I now have a much better undrstanding of my feelings around the feeding tube. I was hoping to write a post about how it's now been nearly 3 weeks with no visible seizures. I was hoping to write a post about how glad I am that we're home. And all that is true.
Her seizures stopped — but I’m crying
I should be jumping for joy. I should be writing a post about how incredible this is after weeks of seizure after seizure after seizure -- because it is. It really does feel like a miracle. Eloise's doctor even shed a few tears when she found out. Because we were all shocked. That's what I want to want to write about. But I'm not. (Okay, well, we did start with that.) Really, instead, I've been crying.