Blogging the life of a little girl with a rare chromosome 2q24.3q32.1 deletion
It’s crazy how much guilt one simple thing — like when and how the baby comes — can bring with it. Originally, baby boy’s due date was September 3. Then the doctor told me at some point September 1 was more accurate, but it never got changed in the computer — so September 3 it... Continue Reading →
All over the Western world we're experiencing a bit of collective grief. It's sad and weird and all kinds of things living in the middle of a country being invaded to the south of us. But life must go on. And, it feels weird to say it, but this week has been a breath of fresh air for us -- when it comes to Eloise.
It had been a tough few weeks and Eloise was finally napping, so Brian and I were scurrying around the house to do a quick cleanup. As I was loading the dishwasher, Brian paused what he was doing, looked at me, and casually threw out a question. "What is our own trigger point? When would we consider fleeing Estonia if Russia invaded?"
This was written on facebook about a week after we got Eloise's original diagnosis. For Eloise, I’d always thought the formula looked like this: Hope = Eloise will be a healthy “normal” kid (or, well, let’s face, it, extraordinary is what I was imagining since she’s ours) But it just can’t look like that. I don’t... Continue Reading →
Eloise The Tiny Fighter 