Blogging the life of a little girl with a rare chromosome 2q24.3q32.1 deletion
It’s crazy how much guilt one simple thing — like when and how the baby comes — can bring with it. Originally, baby boy’s due date was September 3. Then the doctor told me at some point September 1 was more accurate, but it never got changed in the computer — so September 3 it... Continue Reading →
I didn't realize how unprepared I was for the news that came. Estonia is a very tiny nation. It's got 1.3 million people which means everyone knows everyone. Options of many kinds can be limited.
My fifth pregnancy had just passed 13 weeks and it was the night before the genetic bloodtest was supposed to come back. If you asked me that night what we'd do if the results showed some sort of genetic abnormality, I still wasn't sure.
Brian and I did some soul searching Fall 2022. We'd lost 5 babies in 4 pregnancies and had a profoundly disabled daughter. Yet still, our hearts didn't seem to be hardened, even after all we'd been through. We decided it was a sign we should keep going -- we'd handle whatever came our way, just like we always did. Instead, we waited. And waited. And waited.
When Brian and I were going through premarital counseling many moons ago, we were in agreement -- we wanted 3-4 kids. Funny enough, because we were getting married so young, one of my fears was that we'd accidentally end up with far more than 4 kiddos. Yet, within 6 months of our wedding date, we had a long discussion, took a deep breath, and decided it was time to leave babies up to fate. We assumed it would only be a matter of months until we'd be posting our creative pregnancy announcement on social media. Instead, we waited. And waited. And waited.
Eloise The Tiny Fighter 