Blogging the life of a little girl with a rare chromosome 2q24.3q32.1 deletion
To say we’ve had a few rough patches over the last weeks may be an understatement. In case you missed recent events I posted about on Eloise's facebook group and the stories of Eloise's instagram page, I'll recap it. And then move on to those treasures I mentioned. The very short version On Saturday, November... Continue Reading →
Another seizure. This time longer. 40 minutes. In those moments, especially when Eloise gets a sudden breather for a half second before the seizures return and freeze her little body over and over, it’s heartbreaking. It feels like pain is all there is, and pain is all there will ever be. But I know tomorrow... Continue Reading →
I brought my nice camera to the hospital. Yet it sat inside my suitcase, untouched, for our entire 11 day stay. Why? Because I didn't want to remember
It's Friday, February 5th. And it looks like no one will be coming home today.
We brought our camera with us to the hospital. I had dreamed of weary photos of me holding Eloise, exhausted from labor, of Brian bending down next to me laying in the hospital bed, the nurse taking our first out-of-focus photos as a family. But that's not what happened.
Eloise was a name we chose while we w ere pregnant. It can mean either healthy or fighter/warrior. Since we've had so many scares, it seemed a fitting name -- a declaration that she would be healthy, and that whatever trials came her way, she'd fight her way out of them. We had no idea how much we'd need that name.
Eloise The Tiny Fighter 