After 1.5 years of miraculous seizure freedom, one finally broke through again. I hate epilepsy.
Early in the morning I woke up and could swear I heard Eloise crying from her bedroom. As I listened again, though, I heard nothing. But I checked Eloise’s Owlet camera and, indeed, she was crying. She’d pulled a blanket onto her face and couldn’t get it off. I rushed to her room to rescue her.
As I scooped her up and held her little body, she wrapped her arms around my neck and I could swear she knew who I was. I held her for a few minutes as her tears slowed and stopped, grateful for this almost normal parenting moment where I could be a comfort to my kid. With a sigh of regret, I placed her back in her bed, hoping she might get a little more sleep before the day began.
Thirty minutes later, though, and Eloise’s Owlet monitor was alarming for low oxygen. I went in to check on her and immediately my heart sank. Her face was blue and she was jerking with those all too familiar tonic clonic jerks that signal a very bad seizure. I ran to get Brian.
Within minutes, we’d given her something called rescue medication— a large dose of a strong drug meant to stop a bad seizure. We both watched Eloise’s face, holding our breaths, waiting for any signs it had worked.
In those excruciatingly awful moments before the drug kicked in, before we knew she was going to make it, all I could think was, “If we lose her right now, I’m glad one of the last memories she’ll have is being embraced in her mom’s arms. So if she dies now, she’ll die knowing she’s loved.”
Thankfully, not only did Eloise come out of the seizure, but in an hour and a half, the drug had worn off and Eloise was back to herself.
We always knew seizure freedom was temporary, but does this mean she’ll begin having frequent seizures again? We are following up with her doctor, but the reality is we don’t know.
We are just praying for the best. Feel free to join us with whatever you’ve got.
Eloise The Tiny Fighter 
Mallory,
I cannot imagine what you went through emotionally. I am sitting hear crying and praying the seizures do not return..
You and Brian are amazing pillars of strength and faith.
Big hugs to all of you
Jane
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lots of prayers for all of you!!💕💕
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This is the first time I’ve seen your posts about Eloise. My heart breaks for you – I’m also the mother of a severely handicapped daughter, though, thankfully, my daughter has never had severe seizures (she’s now 45 years old).
Are you aware of the high-fat ketogenic diet for people with epilepsy? It often helps, sometimes a lot. It would be worth looking into it, at least.
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Yes Eloise was on the keto diet and actually it made her seizures far worse. She went from 200 seizures in a month to 900. 🥺
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